August 22, 2017
Recently, comedian Jerry Lewis passed away. In addition to his comedy, he was the national chairman of the Muscular Dystrophy Association (MDA) and a regular host of their telethons. He did many great things to help people with ALS, muscular dystrophy, and related illnesses. I would like to share a quote from him that explains his dedication to the cause:
“I shall pass through this world but once. Any good, therefore, that I can do or any kindness that I can show to any human being, let me do it now. Let me not defer nor neglect it, for I shall not pass this way again.” – Jerry Lewis
The MDA helped me as a graduate student with a grant to study fruit fly flight muscles. That was a stretch from studying human muscles, but they were creative with their research program. They helped me even more recently with their three wheelchairs and Hoyer lift. They also funded the ALS clinic I go to at JHU.
I avoided his comedy and his telethons when I was younger, but I am grateful to Jerry Lewis now.
Michael Gollin video interview
We just uploaded these videos to YouTube. It’s nice to remember being able to stand and talk back then. My current psyche was already formed. My first blog post was the same month.
The interview was recorded at MDA’s 2013 Scientific Conference, held April 21-24, 2013, in Washington, D.C. The title was Therapy Development for Neuromuscular Diseases: Translating Hope Into Promise.
List of questions and videos:
1. What is your job and background?
2. How did you learn you had ALS?
3. What ALS clinic do you attend?
4. Do you think it is ironic that you researched muscles under an MDA grant in graduate school and you are now involved with MDA again, 35 years later?
5. What led you to attend this conference?
6. What’s it like to live with ALS?
7. How has your background affected the way you have dealt with the disease?
8. What do you think about MDA’s impact?
Do you have any final comments?
Michael Gollin MDA Interview Question 1: http://youtu.be/TclHk-0mdMw
Michael Gollin MDA Interview Question 2: http://youtu.be/DQj6SIgTEcE
Michael Gollin MDA Interview Question 3: http://youtu.be/j9hZT_dD1-c
Michael Gollin MDA Interview Question 4: http://youtu.be/gZT0ikmxRdQ
Michael Gollin MDA Interview Question 5: http://youtu.be/5AQ4dCiNjMU
Michael Gollin MDA Interview Question 6: http://youtu.be/SBlQ9gjGw3M
Michael Gollin MDA Interview Question 7: http://youtu.be/m_1zVjE4pWE
Michael Gollin MDA Interview Question 8: http://youtu.be/TNWTB_N-FRk