I just added this to the Terminal Disease Cultural Collection https://innovationlifelove.org/a-terminal-disease-cultural-collection/ and thought it worth sharing:

Jon Imber’s Left Hand (Richard Kane 2014). http://www.youtube.com/watch?v=Yacpqzgv8Wc
-Thanks CCALS for reporting on Jon Imber. http://www.ccals.org/PDFs/newsletters/Newsletter-2014spring.pdf
-This is an amazing preview of a documentary about renowned painter Jon Imber, who kept painting right through the end of his struggle with ALS, switching to his left hand, and then to a brush fastened to his head. His last painting was the week he died in April 2014. http://www.bostonglobe.com/metro/2014/04/24/jon-imber-artist-kept-painting-with-exuberance-face-als/bQen0EjAUKD2veEeXwPvpL/story.html
He had an unquenchable zeal for life and beauty, and was part of a loving family and circle of friends that supported him, literally, in his work, holding him up while he painted.
See http://www.jonimber.com for examples of his exuberant, colorful work.