Wow, Thanks, Sorry, Please

Wow, Thanks, Sorry, Please
Michael Gollin
November 2017

Wow. I have had a wonderful life, especially these recent years. I am not afraid of dying. My enormous daily and nightly struggles will end. I will die a peaceful death of complications from ALS surrounded by my family.

Thanks. To my nurses and aides. Thanks. For all the love I received from family, friends, and colleagues. I love my heroine Jill, my fantastic kids Natasha, Max, and Julia, my revered mom and dad, my great siblings Kathy and Jim, my beautiful in-laws, my talented nephews and nieces, cousins, and friends.

Sorry. For my many transgressions. Please forgive me. I forgive you.

Please. Remember me kindly but honestly when I am gone.

It is okay. Really.

Snag

Snag
Michael Gollin
November 2017

There is a complex snag down in the woods,
a dead tree, with seven limbs,
but I can only see it in winter with the leaves down.

Two winters ago,
I thought it was going to fall
before Max’s college graduation.
But it did not.

Last winter,
I thought it was going to fall
before Natasha’s grad school graduation.
But it did not.

I think it will last
until Julia’s college graduation next winter.
It will outlast me.

Unauthorized Biography

Unauthorized Biography
Rita Gollin
September 6, 2017

Editor’s note: Recently, my mother sent me these succinct yet beautiful stories from my upbringing. I asked her for permission to share them on my blog, and she said she was honored. So, here they are:

Dear, darling, forever and deservedly and unreservedly beloved Michael,

I’ve always loved you and always will.

In the fall of 1956 when we decided it was time to have a second child, we discovered that you had already begun to be. Then on July 3, when my parents Max and Sophie Kaplan drove from Brooklyn to Rochester for the Big Event, I served dinner, then called my OBGYN Dr. Thro, and headed for the hospital.

When the doctor arrived at the labor cubicle, the just-installed resident told him that since I wasn’t screaming I was not ready to deliver, whereupon I said, “Dr. Thro, you’d better come in and catch this baby”– which he did. None of us reached the delivery room. The brand new nurse helped me onto a gurney, told me to grab the crib behind it, placed you in it, and said, “Don’t worry, B was the average grade in my graduating class.”

My parents remained for a few days, babysitting Kathy, but also—we later realized—so the family back in New York would assume they had stayed for a bris. In fact, however, our OBGYN had invented an ingenious device that constricted blood to the foreskin and so precluded cutting.

Life proceeded smoothly, punctuated by such events as a first birthday party for you and Judy Harway on the Harway porch.  Shortly before, our friends the Hadasses offered to lend us their nearby house for the summer. But soon after I arrived for a walk-through, you disappeared—then reappeared almost immediately at the top of the staircase, delighted by your new achievement.

On a birthday soon afterward, you immediately put to use your new hobby horse, cowboy hat, and regalia including a red vest, bow tie, and holsters. Nana helped celebrate at a new restaurant on the roof of the airport—where the birthday cake arrived studded with sparklers. Fireworks filled the sky soon afterward, which you (understandably) concluded were also acknowledging your birthday [Editor’s note: this fourth birthday party is my earliest memory].

While crossing the large meadow behind a friends’ pool club soon afterward, you dropped your new wristwatch. Determinedly, you searched in a pattern of decreasing squares until you did indeed find it. Our friend Viv Harway was so impressed that she invited you to serve as an expert respondent for one of her child psychology classes. Your reward was a leather change purse, in a sense your first wages.

Another event at about that time was really a group event. Because Strong Memorial Hospital concluded that medical students would benefit from observing a cross section of four-year-olds at play, they set up a nursery school and charged low fees. But instead of achieving a representative cross section, the class was almost entirely composed of faculty children. It was not long before all you realized that the room’s large “mirror” consisted of one-way glass, and began cavorting before the observers you never saw.

Just a bit about our days on the SS France en route to England. The five of us shared a single cabin—you and Kathy in one set of bunk beds, your father and I in another, and Jim in a crib in the middle bolted to the floor. You named the cabin “BooTiki”—designating second level B, cabin 260. We registered you all for the children’s program, vaunted for its meals, shows, and games. But for the return trip you all refused to be “jailed.” Subsequently and consequently, we all occupied a table for five in the main dining room.

Renting a house in the Village of Datchet (near Windsor and Eton) made you and Kathy eligible for the local school—Eton Porny. So you could say that you went to Eton for a semester. Though all the other boys wore shorts, you stuck to long pants, declaring “I am an American boy.” The other students’ accents amused you, as when you mimicked their pronunciation of “rubbahs.” But you happily raced through the series of increasingly challenging “readers” that your teacher had at her disposal for students who had finished their assigned work. And you didn’t complain about lunches at the English Restaurant across the street, beyond remarking that all the food was beige.

That winter, we left Datchet for our lengthy trek through Europe (pausing for three months at Cabo de Palos)—armed with Legos, books, and miniature animals–eventually returning to London and sailing for home.  Among the many memorable prior events was celebrating your birthday at the huge amusement park on the southern bank of the Thames, which offered scores of carousels and other alluring rides and games.  When the coin you inserted in one of them garnered a large prize, you thought it was a rigged birthday gift (as would happen again years later when you went fishing on your birthday and caught masses of bluefish).

Because I began teaching full time after returning to Rochester, we enrolled all three of you at the preeminent country day school called Harley.  Perhaps you remember coming home the first day and exulting that you had met someone smarter than you were, Eric Worby. And as we soon heard from Marcia and Sy Worby, Eric had said the same thing about meeting you.  As an indirect consequence of the Worby family’s interest in chamber music, you began studying the viola in middle school (training that served you well when you joined the Brighton High School orchestra and years later performed in Swiss villages). Of course we shared your dismay when buying 37 Glen Ellyn Way required switching you to Brighton’s schools (where at Viv’s urging, you were all tested and consequently “skipped”).

A random memory. Perhaps after we had started renting at Santuit Pond but before we bought our Mashpee cottage, you and Jim decided to pool your allowances and buy a canoe. So we went to the Rochester store that handled them, and you made your choice (graciously accepting a small subsidy).

Then after buying the cottage, because we agonized about depriving you of group activities, we registered you and Jim for a two week session at a Scout camp not far from the Sagamore Bridge. But after only a day, you were ready to leave. Why should you line up to go swimming or take out a boat, you asked, when our family had no such requirement? So we immediately collected you. And of course, neighbors’ kids and numerous guests provided ample group activities.

Of course, I sometimes worried about you—as when you stayed out very late at night. And when you (commendably) joined marches that protested the Vietnam War, I feared that you might be hassled or that surreptitiously taken photographs might somehow someday impede any career you chose.  Anxieties about your plan to hitchhike cross country lightened when you agreed to travel from Toronto to the west coast by train.  A copy of “Diet for a Small Planet” precluded concerns about your vegetarian years–and I gladly swapped some of your father’s wine for bushels of vegetables from my office mate’s farm that soon turned into stews and borschts.  More consequentially, we worried about mugging and thefts during your years on Chrystie Street.  And particularly during your last two years at Princeton, your father and I worried that you weren’t given adequate direction and advice.

It’s worth recalling that even in grade school, you were determined to help support yourself—successively delivering newspapers, working as a salesman in Rochester and on Cape Cod, waiting on tables in both places, and perhaps most innovatively, importing and selling Meerschaum pipes while at Princeton.  One of your jobs rightly earned a place on your college applications: iguana sitting. And as one happy result of your Princeton-acquired biochem expertise, you assisted Tom Punnett in some of his experiments—while spending the summer with the Punnetts and enjoying Hope’s cooking.

The position as research assistant that you were offered in Switzerland at the ETH had some remarkably fortuitous results, despite the traumas of the suicide of scientist you were assisting and the redirection of your work. Not surprisingly, you made fine friends and took fine trips during those years (from which we benefited enormously when we visited you). Your commitment to make the most of each opportunity was evident on your trip on the Trans-Siberian railroad, as when you managed to visit a Soviet dissident, and when your fellow travelers persuaded the boat to Japan to await you while you coped with a bureaucratic goof in your paperwork.

Far more consequentially, when you decided that you did not crave a scientific career, you determined that an extra LSAT form was available a train ride away from the ETH at the U.S. military base in Dusseldorf–took and passed the test, and entered the BU law school. Not surprisingly, you thrived. One innovation would turn out to be representative: inaugurating scholarships for students who opted to work for nonprofits rather than paying law firms after their first year of classwork. That scholarship system is still in place and has been emulated by other schools—and was the precedent for the scores of subsequent organizations that you founded and worked for (implicitly expanding the meaning of the term “pro bono”).

One of many happy memories repeatedly surfaces. One summer day when your father and I were vacationing along the Mexican east coast with you and Jim, a young fisherman took us out on the ocean and provided snorkeling and scuba gear.  As I vividly recall, I snorkeled blithely on the surface while watching you instruct your not-yet-licensed brother in the niceties of scuba.

It’s almost impossible to summarize the rich and varied professional and personal life that ensued, as you generously and selflessly augmented the lives of innumerable individuals and institutions. You married a remarkably loving and talented woman, and you and Jill have begotten three unusually independent and enterprising children.  It is understating to say that your InnovationLifeLove blog is filled with wit, wisdom, and moving poetry, whose influence is already enormous. From the start, you’ve been a role model for responsiveness to and appreciation of the natural world we all inhabit, and for your diligent probing of our shared cultural heritage.

I can barely even bring myself to type the letters ALS.  Your determination to make every possible effort to cope with that scourge is heroic. My admiration for you is boundless.  I’ve never been a religious person. But as I humbly and gratefully acknowledge, you are and will always be part of me.

Your loving mother,
Rita

Dad Libs

Editor’s Note: To make creative writing a little easier for my dad (though no less expressive), I wrote the opening phrases of this piece (As a boy, etc.) and he filled in the blanks. You could call it a thought experiment in succinctly describing the experience of a life in 100 words or less– a “micro-autobiography”. The name “Dad Libs” is a play on the popular word game Mad Libs, where players fill in empty spaces in a template story with their own words. You can find the template below- try it yourself if you’d like. Here is what we came up with.

-Max

Template

As a (boy/girl), I was…

As a teenager, I was…

In my twenties, I was…

In my thirties, I was…

(And so on, however long your story may be.)

Dad Libs
Michael Gollin
August 2017

As a boy, I was silly and adventurous.

As a teenager, I was dissolute, thrill-seeking, and intellectual with low emotional intelligence.

In my twenties, I was diligent, motivated by science and law.

In my thirties, I was building emotional awareness, a family, and a career.

In my forties, I was expanding expertise and keeping up with a growing family.

My fifties were five years of fitness and spiritual awakening, then five years of illness and confronting mortality.

My sixties is the peaceful decade.

Sixty years old

Michael Gollin
July 3, 2017

Sixty years old
At fifty five, I slowed down.
I had been going fast and faster.
I lost running, walking unaided, walking at all, standing.
I lost typing, driving, using tools, gardening.
I lost eating solids, eating liquids.
I lost hugging and kissing.
I have my five senses and the sixth one, love.
I am grateful for the insurance and money
to afford round the clock care.
My eyes work, and I have a little motion in my neck and left arm.
All night I dream I am healthy.
I am enveloped in love.
It  is a tragedy to die in your fifties,
but it’s just bad luck to die in your sixties.
An improvement.

Pioneer

​Michael Gollin
July 2016

I am lost in a strange land between life and death.

My body rebels. 

My mind resists. 

I know the destination.

It is unavoidable.

The question I confront is how will I get there and when.

Most people don’t even recognize that this land exists.

But some admire me just for being here.

I am a pioneer.

I can’t use my hands or legs and I can’t talk or eat or breathe without a ventilator.

But I will find my way in the end.

New E-dition of My Book

 
Innovation Life Love: Reflections on Mortality
Now Downloadable from Amazon

Innovation Life Love: Reflections on Mortality is now available as an ebook on Amazon.com. Author Michael Gollin  was diagnosed with amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s Disease) in 2012 and began blogging about his experiences and philosophy, forming the basis of the 262-page book.
 
Innovation Life Love offers insight into the unusual challenge of knowing one’s ultimate fate of progressive paralysis and deciding to make the most of every day. “In my personal and professional life as patent attorney, author, professor, and non-profit entrepreneur,” Gollin writes, “I’ve tried to be a productive member of all my communities: family, friends, work, home, country, and planet. When I was diagnosed with ALS, I was dragged into a terrifying new situation, but I realized how lucky I’ve been in life, and I quickly resolved to make the best of the situation. It has been surprisingly liberating to explore this uncharted territory.” In it, he confronts death head-on, contemplating dead wildlife and evolution in the Galapagos and feeling echoes of his ancestors in the Lithuanian woods where they were murdered.
 
Innovation
Innovation Life Love was adapted from Gollin’s writings—poetry, essays, photographs, and speeches—that have appeared on his blog, innovationlifelove.org. Gollin also authored  Driving Innovation: Intellectual Property Strategies for a Dynamic World (2008), available in hardback, paperback, and Kindle versions on Amazon.com). With Innovation Life Love, Gollin demonstrates how he has applied creativity and problem-solving skills to the physical, technological and emotional challenges he confronts every day.  

Life and Love
Insights into the meaning of life are thrown into sharp relief by the prospect of one’s own death, according to Gollin, who is compelled by love to pass on what he has learned and experienced in life. He succinctly answers questions about life, setting goals, and making decisions. He invites us to appreciate the beauty of nature by sharing a rafting trip down the New River and a hike the Sun Gate of Machu Picchu. Readers worldwide have been inspired by Gollin’s wisdom, courage, and optimism in the face of devastating physical illness.

Innovation Life Love Availability
Innovation Life Love is available for immediate download for $5 at Amazon.com. The print version is available on Amazon.com for $14. Read more about Michael Gollin on Amazon.com, his blog site, and at the Venable LLP website.
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For more information, contact:

innovationlifelove@gmail.com
For more information on Innovation Life Love:
Innovationlifelove.org
Amazon.com website.